More tales from the benefit queue

Has the Department for Work and Pensions run out of money for paying benefits? I'm left wondering. For the second time in a month, my ESA has failed to arrive in my bank account on the due date. The last time it happened, I called the DWP and was told ' it's a national computer problem - we don't know why or what causes it'. They said they knew about my missed payment and had already manually rescheduled the payment. It arrived 5 days late.

I asked what would happen if I had no money whatever and could not fall back on savings till the money was in my account. "You can go to your Job Centre and get a crisis loan". Oh yes, more bureaucracy.

WHY is this happening? WHY are people who rely on benefits to pay bills and feed themselves, be treated in such a throwaway manner? What are the problems with the payments system and when are they going to be fixed - Yvette Cooper you should tell us, it's your ship and your watch!

I also received the paperwork about my ESA appeal. When I read what the so-called health professional said I was incredulous. Was this the same medical assessment I attended or did this report talk about someone else?

For instance, one part of the medical assessment procedure referred to my ability to squat and kneel. I can kneel and get up again only with difficulty because of pain in my knees. I demonstrated at that assessment that I could only kneel and get up by leaning on the furniture and not taking all the weight on my knees. I also said I could not squat or sit cross legged at all. In the report I was stated as having no problems with these movements.

On my original form, I had left a number of boxes blank - probably due to the depressed state I was in. The assessment did not re-visit those questions, it simply made assumptions about the answers.

Statements were made about my hypothyroidism which demonstrated clearly that the assessor had no detailed knowledge about this condition, its symptoms or its effects and therefore was inadequately qualified to make any accurate assessment of my ability to work. She was a nurse, not an endocrinologist, or even a GP. The vet I take my cat to would have done a more competent assessment.

The most telling part of the whole report was the part that replied to my challenge that the assessor was incompetent to do the job, that it was not necessary to have a doctor's qualification to become an assessor making judgements about someone's ability to work. How long before we return to having butchers as NHS surgeons to save money?

Anger over possible mistakes in my medication

I learned today that the medication that I have been receiving for many years for hypothyroidism may not necessarily be appropriate or ideal.

A very good friend sent me a link to this site which reveals a deep controversy about the correct treatment which has resulted in the UK medical profession and our National Health Service virtually to use one treatment (thyroxine) to the exclusion of all others. Further research led me to TPA-UK which is also very helpful for UK hypothyroid sufferers.

From these sites, I discovered that the information being given to patients about their condition, the symptoms, possible helpful supplements and dietary advice is very variable. In my case this resulted in not being told anything about an inadequate dose causing severe depression, mood swings and anxiety on top of all the unpleasant physical symptoms like weight gain, chronic tiredness, loss of libido, poor concentration and memory loss.

When I was a child, I was treated with a natural thyroid extract. At some time the synthetic alternative (thyroxine) was developed, but it only provides one part of the two-part (T4 and T3) natural hormone. This is what I have been treated with for many years, I really can't recall when I switched, but it could have been as long ago as my 20's and I am 57 now.

The information I now have, answers many questions about what has been happening to my body and my mind over the last 9 years. It doesn't give much hope for the future though, as currently, the NHS doesn't seem to want to listen to the evidence produced by endocrinologists in other parts of the world. They are even trying to prosecute one doctor who has been treating patients with alternative medications, which more closely replicate the hormone the human body is supposed to produce.

The controversy is around whether the natural product and/or a combination of T3 and T4 synthetics is a better treatment than thyroxine alone and on the arguable risks of prescribing synthetic T3 at all. There are different blood tests for hypothyroidism and it also appears that the one most commonly used by the NHS in the UK may not accurately reveal the T3 level at all. Having looked at blood test sheets I have been given to take to the clinic, I know this is the test my current GP has been using.

I have unsuccessfully challenged my treatment before, but I am going to do so again and will be interacting with other sufferers on an online forum to find out if there is any hope of even trying something else to see if it improves my life.

For the time being, I will be going to buy some of the natural supplements I have found out about - milk thistle, valerian and St John's Wort.

The physical symptoms and depression played a big part in the breakdown of my marriage and have kept me out of the workplace for many years - could anyone blame me for feeling angry now?