Showing posts with label depression. Show all posts
Showing posts with label depression. Show all posts

Friday, September 11, 2009

More tales from the benefit queue

Has the Department for Work and Pensions run out of money for paying benefits? I'm left wondering. For the second time in a month, my ESA has failed to arrive in my bank account on the due date. The last time it happened, I called the DWP and was told ' it's a national computer problem - we don't know why or what causes it'. They said they knew about my missed payment and had already manually rescheduled the payment. It arrived 5 days late.

I asked what would happen if I had no money whatever and could not fall back on savings till the money was in my account. "You can go to your Job Centre and get a crisis loan". Oh yes, more bureaucracy.

WHY is this happening? WHY are people who rely on benefits to pay bills and feed themselves, be treated in such a throwaway manner? What are the problems with the payments system and when are they going to be fixed - Yvette Cooper you should tell us, it's your ship and your watch!

I also received the paperwork about my ESA appeal. When I read what the so-called health professional said I was incredulous. Was this the same medical assessment I attended or did this report talk about someone else?

For instance, one part of the medical assessment procedure referred to my ability to squat and kneel. I can kneel and get up again only with difficulty because of pain in my knees. I demonstrated at that assessment that I could only kneel and get up by leaning on the furniture and not taking all the weight on my knees. I also said I could not squat or sit cross legged at all. In the report I was stated as having no problems with these movements.

On my original form, I had left a number of boxes blank - probably due to the depressed state I was in. The assessment did not re-visit those questions, it simply made assumptions about the answers.

Statements were made about my hypothyroidism which demonstrated clearly that the assessor had no detailed knowledge about this condition, its symptoms or its effects and therefore was inadequately qualified to make any accurate assessment of my ability to work. She was a nurse, not an endocrinologist, or even a GP. The vet I take my cat to would have done a more competent assessment.

The most telling part of the whole report was the part that replied to my challenge that the assessor was incompetent to do the job, that it was not necessary to have a doctor's qualification to become an assessor making judgements about someone's ability to work. How long before we return to having butchers as NHS surgeons to save money?

Monday, July 06, 2009

Depressed? Don't expect help from the DWP

Six months ago, a series of personal and financial crises sent me even further into deep depression than I already was. The illness behind it all is hypothyroidism, a condition which, if not adequately treated leaves you exhausted, mentally and physically and unable to deal with life at its best let alone its worst.

If some idiot at my local Job Centre had not given me incorrect information, I might have already been claiming the benefits to which I was entitled and had my previous GP had not been so totally useless my condition might have been better treated and things would never have got that bad. At least I had the strength to go and demand a referral to an endocrinologist and then the energy to insist I saw someone fully trained who made a change in my medication.

When I did get the right information from the Citizens Advice Bureau, which was to apply for ESA, the benefit that has replaced Incapacity Benefit, I was still struggling to deal with daily life. Just applying for ESA is an unnecessarily stressful experience. As a result of the incorrect information I lost two months of benefit and help with my mortgage which could not be backdated because there is a limit to backdating any benefits regardless of the circumstances.

The main form that you are required to complete is designed with two situations in mind.
1. You are suffering from an illness that makes you physically unable to work. You have to describe in minute detail how this affects every aspect of your life and is quite intrusive and personal.

2. You are mentally incapacitated to the point that someone has to complete the form for you.

There is nothing in between. The form simply does not deal with the whole spectrum of mental illness around depression. I made some angry notes on the form to that effect, but they were just ignored.

At some time later two things will happen. You will get called for a medical interview and a 'job-related' interview. The medical interviews, in my area at least are subcontracted to a company called ATOS who employ so-called health professionals to conduct an assessment partially based on what you wrote on the form.

The remainder of the assessment is anything but personal. They have a computerised system with a series of check boxes which they complete without showing you which boxes they ticked. They do ask you questions and also add some detail based on what you say. The outcome is simple. The boxes result in a score. If you don't score high enough, you are disqualified from ESA. I would advise anyone going to one of these medicals to get help from anyone you can, and know what they are supposed to do. Then, if they don't conduct the medical assessment properly, make a formal complaint to ATOS themselves and to the DWP.

More of what to do in a moment if you are scored too low to stay on ESA.

The other interview is aimed at trying to get you back into a job if you don't have one. The Job Centre gave me a leaflet for an organisation called the Shaw Trust. The leaflet claimed that they could 'get you access to training' by which most people would assume that they actually had funds to do this. Wrong. They have lists of other organisations which may or may not be able to fund the training you need, but it is very limited. What I would need, IF I was well enough to return to work is some very specialised very focussed training in specific software languages that have become the lingua franca of website development in the last few years. The Job Centre had already denied me this, so I'm not hopeful.

Now you would think that you would get the medical interview out of the way to establish whether or not you really were fit for work rather than putting more stress on you by forcing you to attend the job related one. No, the system is arse about face, a situation even admitted by the Shaw Trust.

At one of the job-related sessions the interviewer told me fairly bluntly that people with depression frequently did not tick enough boxes to stay on ESA. Therefore the sessions that I went through with them are now pretty well pointless, because once you are on JSA (the current name for unemployment benefit) a whole load of different conditions apply as to what training you can get. And of course you are then required to start a new claim for JSA with a whole load of new forms, no getting away with just going from one benefit to the other.
Moreover, you are then taken away from the people who were just getting to know about you and what you needed to get back to work and shoved back into the JSA system which is so overloaded at present it can't cope anyway.

I wrote a few months ago about the farcical situation of the Government announcing 'training initiatives' which just don't materialise at the delivery point. I can tell you that, according to a friend trying to get appropriate training from the Job Centre, those funds still are not available where and when they are needed. Still pie in the sky then. This was the previous blog post.

The alternative, which I found today that I am going to have to go through, is the appeals procedure for ESA. It is another stressful and upsetting situation which is anything but helpful for someone not properly recovered from depression and still getting their system back in balance on new hypothyroid medication.

What concerns me most is that processing these forms will result in a lapse of my benefits and even if they are re-instated and backdated pending the appeal, I may be without any income at all for weeks.

When I saw my new GP a week ago, she said that it could take another six months before I get my medication levels completely right and really start to feel well again. At least she is prepared to listen to me and not just rely on blood tests - more box ticking which led to the decline in my health in the first place.

There are very severe shortcomings in the way that ESA is being administered and my fear is that people who have been treated for depressive illnesses are being thrown into this back-to-work system far too soon and may relapse, possibly dangerously.

Before the latest economic decline, we were told that Incapacity Benefit was being replaced by ESA with the aim of getting more people back into work. Well Ms Cooper (Yvette Cooper is the new Minister for Work and Pensions) Mr Brown, there are even fewer jobs now and even less resources to help you get one.

Perhaps you had better just quietly adjust those tick-box scores and let a few more people stay on ESA where they should be anyway.

Friday, January 09, 2009

Nearly past being angry about some things

Something strange has happened this week. Having made up my mind to do some things I really didn't want to do, I now feel a huge sense of relief. Sad too, but also that I can cope with the next few days at least. There is some anger too, read on. I think I have reached a plateau of wisdom where I can work to change what can be changed and to fret and agonize less about what is in the past and about the things over which I do not, and never will have any control.

Even the fact that my estranged husband decided he was too tired to come to an arranged meeting on Wednesday about the house re-possession didn't wind me up as much as it might have done. He claimed he'd had a 13 hour day, and a major virus attack on the computer systems he works with. Maybe it's not true, but I can't prove it or force him to come. Or maybe I am just too tired to worry any more.

By the time this is posted he'll have an email telling him the same things, but basically I've decided to cash in the last of my savings so that I can stay in the house for a few more months and sell it myself rather than let those crooks at Derbyshire Home Loans repossess and sell it at some ridiculously low price. I would never forgive myself, not to mention not having a roof over my head.

And the second thing, I stood across the road from the estate agents for several long agonising minutes before getting the courage to go in there and start the selling process. Well, half start it anyway. We talked about these stupid Home Information packs that UK house sellers have to have, and what the market had done since 2004 and whether the house had a chance to sell in this horribly depressed market. I wanted to do two things before I actually put the for sale sign up. Firstly to tell John, and secondly to have a chance to clean and tidy up before the agent comes round to do an appraisal.

My car is kaput at the moment, engineer coming tomorrow, so I was on 'Shanks pony' home after a nice latte and a pastry in Caffe Nero. I was exhausted when I got indoors. It's not a long walk, 20 minutes with a footbridge across the A27 thrown in, lots of steps or a long ramp, but I've got some knee damage and I'm definitely not fit.

Before all that, I had gone through a 2 hour heart wringing session with my psychiatrist Last night was a journey through the darkest suicidal feelings I have ever experienced. Before, it has always been a 'cry for help' when the thoughts about how and where have been mixed with the idea of how I might be rescued or saved at the last moment and that John would come back. This was very different. I just made up my mind that it was time, I was totally at the end of my rope and that I no longer want to be found or saved. If the car had not been broken and I couldn't drive to the beach and do what I was thinking about I might well not be here telling you about it. The strange thing was that I was also still thinking about the future and lots of 'what ifs'.

Sib took me and picked me up from Parkway. He's got a mystery shop to do on a pub with expenses for food tomorrow, and he's asked me along so I won't have to worry about cooking. I've had home-made soup for dinner and a sandwich made with the lovely French-style crusty bread I bought this afternoon.

Rachel (my doctor at Parkway) helped me to make a sort of plan for what I would do so I didn't repeat last night. We also talked about the events that led up to John leaving, and the still very sore feelings of betrayal, not just by him, but also by the person who used to be my best friend and her daughter who I believe was having an affair with John, and also by John's Mum who apparently knew what was going on, even right back to when we were on holiday in the USA 3 months before he left.

Rene never wanted us to get married in the first place. She wants grandchildren and that was more important to her than her son being able to choose who he married regardless of age and fertility. She also never understood the special friendship I have with Sib who I was married to before John, for 19 years. We will never be a couple in that sense again, but we've known each other since our teens and at school and you can't just wipe that out. I thought John understood, but maybe he never really did or perhaps I made him feel excluded somehow.

I got over to Rachel too, how much I still feel so angry that John punished me for being ill with the thyroid problem, wanting to believe I didn't love him and refusing to accept the medical evidence, but also that I was sad and guilty I couldn't support him more when he was depressed by events at work, and traumatised by the car accident he had, and needed me to understand.

So there it is. I have a little more work to do on the other blog post I started earlier about my favourite soup recipes and I have to compose the email to John. Then I can go to bed and I do believe that I will sleep.

Friday 9th

Today, being the 3-year anniversary of John leaving could have been really difficult, but the decisions I made earlier in the week have made a lot of difference. I have negotiated a deal with the mortgage lender, the repo is cancelled and I've had two good nights sleep.

Sib and I went for our pub curry last night, not the nicest JDW we've been in, and we de-camped back to Havant for another drink. Someone I know who also knows John was in the pub, she scowled at me, then got texting. Well, Mrs Nosey, if you WERE texting him, tough, because he already knew who I was going to be with last night.

Car guy was supposed to come back today and take 'Lily' away for a service and some TLC, but he didn't turn up. Don't know why. Sib gave me a lift to Chichester today to do a mystery shop and quick supermarket stop.

John is supposed to be at the sailing club tonight. I'll have to walk there, but it's only about 10 mins. I don't want a fight with him, and I don't think it will go that way. I'm doing what he wants as far as the house is concerned.

I'd better go and get something warming to eat....weather is supposed to warm up over the w/end but hasn't yet.